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Who We Are

Welcome to the Huntington's Disease Society of America's (HDSA) Northern Florida Affiliate. We are a part of HDSA's Southeast Region.

 

Our Mission

To improve the lives of everyone affected by Huntington's disease and their families.

 

About HDSA

The Huntington's Disease Society of America (HDSA) is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington's disease. From community services and education to advocacy and research, HDSA is the world's leader in providing help for today, hope for tomorrow for people with Huntington's disease and their families. In the battle against Huntington's disease no one fights alone. At HDSA, family is everything.

HDSA Centers of Excellence

The HDSA Centers of Excellence provide an elite multidisciplinary approach to Huntington's disease care and research. HDSA currently has 50 Centers of Excellence across the United States.

At these world-class facilities, patients benefit from expert neurologists, psychiatrists, therapists, counselors and other professionals who have deep experience working with families affected by HD and who work collaboratively to help families plan the best HD care program throughout the course of the disease.

For the exact address of each HDSA Center of Excellence, click here for our Locate Resources page



Contact Us

Northern Florida Affiliate -
Email:  hdsa_nfl@yahoo.com
Phone:  904-641-7984

Southeast Region Contact and for donations:
Michal Biletzki
HDSA Southeast Regional Development Director
c/0 Northern Florida Affiliate
505 Eighth Avenue, Suite 902
New York, NY 10018

HDSA Southeast Region Staff Contact
Michal Biletzki, Regional Development Manager
P. (212) 242 -1968 x221
E. mbiletzki@hdsa.org

To contact the HDSA national helpline, please call 800-345-HDSA. The HDSA national helpline is open from 9:00 a.m. - 5:00 p.m. EST Monday through Friday.